What's At Stake for Medicaid and How To Take Action

In This Video
0:00 – Welcome and introductions
1:43 – Meet the speakers: Epilepsy Foundation’s Laura Widner and Roxanne Yagubi
3:06 – What is Medicaid and why it matters to families with epilepsy
10:24 – Congressional proposals that could affect Medicaid
12:00 – What’s in the current budget reconciliation package
15:38 – How proposed changes could impact coverage and services
18:04 – Work and reporting requirements explained
21:41 – What’s not included thanks to community advocacy
22:28 – How to take action: advocacy steps and toolkit overview
24:36 – How to contact your members of Congress and share your story
36:07 – Tips for effective meetings and follow-up
41:02 – Audience Q&A and real-life advocacy insights
55:52 – Final thoughts, call to action, and closing remarks

Proposed changes to Medicaid could have serious consequences for families of children with medical complexity and disabilities.

This timely and important conversation about what’s being proposed, what it could mean for your child’s care, and—most importantly—how you can make your voice heard.

Hear from three seasoned advocates: Laura Weidner, Chief Advocacy and Government Relations Officer at the Epilepsy Foundation, Roxanne Yaghoubi, Senior Director, Federal Relations and Policy at the Epilepsy Foundation, and Gabi Conecker, Co-Founder and Executive Director of Decoding Developmental Epilepsies and DEE-P Connections.

They’ll break down the legislation in clear terms, share how families like yours could be affected, and offer concrete steps you can take to advocate for your child and community. You don’t need to be a policy expert to make a difference. Come learn, connect, and feel empowered to act.