Impact of Rare Diseases: More than you can imagine

Rare Disease Day 2025 - More Than You Can Imagine

Ursula von der Leyen’s Vision for Europe: 2024-2029

Stanford Med LIVE: The State of AI in Healthcare and Medicine

Training Session 1: How does the EHDS work?

Patient Partnership Webinar - Lupus100 and beyond by Lupus Europe and ERN RECONNET

Training Session 3: EHDS and Secondary Data

How Patient Advocacy is Changing Rare Disease Research

Jakubiak o delegalizacji Brauna: Więcej powodów jest wobec KO

Rare diseases Day at the European Parliament

Deterring Biological Weapons & Strengthening the Biological Weapons Convention

O wizycie Zeleńskiego w Polsce | Jacek Bartosiak | Budzisz, Stefan, Świdziński | Strategy&Future

«Пхеньян выглядит лучше любого российского города» — правда о КНДР спустя 15 лет

Down syndrome (Trisomy 21) - causes, symptoms, diagnosis, & pathology

Pijana Polska Bieruta. Jak alkohol niszczył kraj po 1945 roku. Meliny, bimbrownicy i propaganda.

Tomasz Grybek on patient involvement and making lived experience count in regulatory decisions

Developing a Generic PREMs for Rare Diseases by Rare Diseases Ireland

‘Europe needs an independent foreign policy’: Professor Jeffrey Sachs at European Parliament

Лиза. Жизнь с биполярным расстройством. История для проекта «вМесте»

How patients are driving transformative science in rare disease

Part 1: Navigating the funding landscape for rare disease research webinar