Genetic Counseling and ALD Newborn Screening: Resources for Newly Diagnosed Families

Meet the University of Minnesota Masonic Children's Hospital genetic counselor Katie Wiens and learn what having a child identified through newborn screening for ALD (or adrenoleukodystrophy) means for your entire family. The University of Minnesota is one of several programs that provide support to leukodystrophy patient families. Please go to the Aidan Jack Seeger Foundation, the Stop ALD Foundation or the Leukodystrophy Family Forum to get more information about doctors and resources for you and your family. You are not alone. This video was produced with support from the Calliope Joy Foundation (www.thecalliopejoyfoundation.org).