The Road to Diagnosis – Lessons Learned | Dr. Arezou Khosroshahi, Emory University | IgG4ward!

Welcome to the IgG4ward! PeachJAM Series, filmed live at Emory University in Atlanta, Georgia.

In this opening talk, Dr. Arezou Khosroshahi, host of the PeachJAM and a leading expert in IgG4-related disease (IgG4-RD), shares “The Road to Diagnosis – Lessons Learned.”

Dr. Khosroshahi reflects on how far the IgG4-RD community has come—from years of misdiagnosis and uncertainty to increasing awareness, collaboration, and hope. She highlights a powerful patient story, the evolution of research, and key milestones that have shaped the path forward for those living with IgG4-RD.

“Many patients have faced a slippery, foggy, and uncertain road to diagnosis. But with collaboration and awareness, that road is becoming clearer.” -Dr. Khosroshahi

What You’ll Learn:

Why IgG4-RD has been called a “disease hiding in plain sight”
How collaboration between specialties leads to faster diagnosis and better care
The story of how experts around the world came together to define and name IgG4-RD
Why the new ICD-10 code (2024) is a turning point for research, access, and patient support
The importance of persistence, awareness, and community connection

This talk launches our IgG4ward! PeachJAM Video Series — weekly releases featuring expert presentations, patient voices and Q&A sessions designed to educate and empower the global IgG4-RD community.

#igg4rd #igg4relateddisease #patientadvocacy #patienteducation #awareness #igg4warrior #igg4ward #peachjamseries

00:00 Welcome to the PeachJAM – Dr. Arezou Khosroshahi
01:40 Acknowledging Sponsors and Community Commitment
02:50 Introducing Katherine Provencher & Dr. John Stone
04:00 Keynote Begins – The Road to Diagnosis: Lessons Learned
06:00 A Patient’s Story: Misdiagnosis and the Search for Answers
12:30 Why IgG4-RD Is Difficult to Diagnose
18:10 The History of IgG4-RD in Medical Literature
23:05 The 2011 Boston Consensus and Global Collaboration
26:15 Advances in Research and Clinical Care (2011–2025)
31:00 ICD-10 Code and Access to Care
33:15 Lessons from Two Decades of Progress
36:10 Audience Q&A – Prevalence and Centers of Excellence
41:15 Audience Q&A – Coordinating Care and Testing
45:00 Closing Remarks – Hope for the Path Forward