Heart of a Champion: Playing Defense Against Hereditary Amyloidosis (hATTR)

this powerful episode, former Kansas City Chiefs great Art Still shares his personal journey with hereditary ATTR amyloidosis (hATTR), a genetic mutation affecting 1 in 25 African Americans. Art discusses how years of playing in the NFL masked the symptoms of this underdiagnosed condition, which can lead to heart failure and other serious health issues. He emphasizes the importance of genetic testing and early detection to manage the disease and extend your shelf life.
Art's commitment extends through his foundation, STILL4LIFE.org, where he shares his story and provides resources for others affected by hATTR. The foundation aims to bridge the gap between the medical community and the public, using accessible language to explain complex genetic concepts. Discover how STILL4LIFE.org is empowering individuals and families to navigate the challenges of hATTR and advocate for their health.
Key Takeaways:
hATTR is an inherited genetic condition that often results in heart failure early in life
Symptoms like numbness in feet and hands, unexplained lower leg swelling and carpal tunnel may be signs of hATTR
Germline genetic testing can help with timely diagnosis and management
Black Americans are disproportionately affected by hATTR
Raising awareness and improving trust in healthcare are crucial for early detection
For more information about hereditary amyloidosis visit https://www.attrrevealed.com/

META DESCRIPTION
Ever heard of a tricky heart problem called hATTR? Kansas City Chiefs great Art Still did! He shares his story about playing NFL football, finding out he had this genetic variant, and how it affects his family. It's more common in some groups, especially African Americans. Learn the signs like trigger finger, leg swelling and rotator cuff injuries and others doctors do not recognize as hATTR. Art's here to help us understand our bodies and families better! He talks about his group, STILL4LIFE.org, that helps people learn about hATTR. We help you learn the language and build confidence to be an effective advocate for a precision medicine approach to your healthcare.

LINKS
ATTRreveal.com
still4life.org

This is GENETICS FOR HEALTHCARE—a podcast helping turn sick care into true healthcare! We are dedicated to helping patients and caregivers learn the language and build the confidence to advocate for precision medicine in treatment, survivorship, disease screening, and prevention.

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