RECOVERY PART 2 // The Symptoms that my First Blood Patch FAILED

Detailing the second two weeks of non-targeted blood patch recovery. In part 1 (weeks 0-2), I talked about my successful non-targeted blood patch for a spontaneous CSF leak. In the 2 weeks after that video, the blind blood patch unfortunately wore off and I started to have symptoms of low cranial pressure again. My blood patch wore off, but we still learned a lot from it!

HEAR ALL ABOUT IT:
○ Blood patch procedure experience:    • My First BLOOD PATCH PROCEDURE // What a B...  
○ Blood patch recovery part 1 (first 2 weeks):    • Blind BLOOD PATCH RECOVERY // Part 1: Proc...  

This three-location epidural blood patch procedure was my first spinal CSF leak treatment in a long and complicated medical diagnosis story. I got this blood patch while breastfeeding, with 2 babies 2 and under, so I briefly touched on the challenges and triumphs related to an outpatient surgery while breastfeeding.

MORE RELATED VIDEOS:
○ Learning I'm getting treatment!    • CONFIRMED: A BLOOD PATCH is in my Future!?...  
○ Wavering on the path forward:    • "I think I was wrong" // WAVERING on Blood...  
○ Choosing blood patch vs CT myelogram:    • My Spinal CSF Leak- BIGGEST NEWS YET!! // ...  
○ What is a blood patch?    • What is a BLOOD PATCH? // Showing Why I'm ...  

For those of you wondering what a blood patch recovery is really like, and what a blood patch recovery feels like, this video is for you. So, what is a blood patch like? My blood patch procedure experience was a very typical epidural blood patch procedure, and I recovered well from my epidural blood patch, so this story should help you understand what to expect. I hope you enjoy learning about how to fix a brain fluid leak.

Fortunately, feeling better after my epidural patch could be considered partially diagnostic because it confirms CSF leak diagnosis! Finding out that my brain was leaking fluid has been helpful to mitigate symptoms, but the ideal solution would be to have a blood patch procedure. This is one of the most common solutions for how to fix a brain leak.

If you HAVE POTS and SUSPECT A LEAK, watch this:
○ POTS vs. Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Every PO...  

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SOME PREVIOUS VIDEOS…

Other Spinal CSF Leak Diagnosis Roller Coaster videos (2022):
○ Suspecting my “migraines” are a Leak:    • Am I MISDIAGNOSED?! // CSF Leak Symptoms M...  
○ CSF Leak Diagnosis Update:    • CSF Leak Diagnosis UPDATE // My Neurosurge...  
○ 48-hour Flat Test Vlog:    • VLOG + TIPS: The 48-hour FLAT TEST // The ...  
○ After Medical Gaslighting:    • After MEDICAL GASLIGHTING // The doctors w...  
○ Sick Day Vlog & Canceled CSF Appt:    • Quick SICK DAY VLOG, & RIP to my short-liv...  
○ Being Refused a Spine MRI:    • Diagnosis Story UPDATE // No MRI...time fo...  

IMPORTANT POTS and Leaks KNOW THE DIFFERENCES
○ POTS vs. Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Every PO...  
○ A POTS Episode Explained:    • Play-by-Play of a POTS EPISODE // Is POTS ...  
○ Part 1 of POTS Care Q&A:    • POTS CARE Q & A // Dysautonomia, IIH, EDS,...  
○ Part 2 of POTS Care Q&A:    • Part 2 of POTS CARE Q&A // On POTS Symptom...  

COMORBIDITY THINGS:
○ Joint Hypermobility:    • JOINT HYPERMOBILITY // Showing a POSITIVE ...  
○ NUCCA & CCI:    • NUCCA for IIH // Fixing C2 NECK PAIN is he...  
○ Fascial Counterstrain (for IIH & more):    • FASCIAL COUNTERSTRAIN for IIH // A Therapy...  

High Cranial Pressure (IIH) (2021):
○ Diamox for IIH:    • Prescription DIAMOX for IIH (acetazolamide...  
○ Getting OFF Diamox:    • IIH + No More Brain Pressure Medication //...  
○ Passing the Tilt Table Test:    • PROGRESS CHECK // At-Home Tilt Table Test ...  

○ Dr. Phil Show - Medical Gaslighting:    • I Went On DR. PHIL! // Medical Gaslighting...  
○ Dr. Phil Q&A:    • DR. PHIL SHOW Q&A // Traveling with 2 Babi...  
○ Advice for Patients:    • ADVICE FOR PATIENTS // How to Advocate for...  
○ On Invisible Illness, pros/cons:    • INVISIBLE Illness // The TRUE Pros & Cons ...  
○ What Fainting Feels Like:    • What Does FAINTING Feel Like? // POTS Symp...  
○ Open Letter to Demi Lovato (“diabetic” ice cream):    • Open Letter to DEMI LOVATO // Thoughts On ...  

○ Vestibular Therapy:    • EXERCISES FOR VERTIGO & DIZZINESS / My Fav...  
○ Ginger for Migraine Relief:    • NATURAL MIGRAINE REMEDY? // Testing whethe...  
○ My Food Triggers:    • FOODS I AVOID FOR MIGRAINES // My Dietary ...  
○ Nausea Relief:    • NAUSEA & Morning Sickness // NATURAL NAUSE...  
○ Migraine Life Modifications:    • Day-to-Day LIFE MODIFICATIONS I've made fo...  
○ Harry Potter Sorting (Jen vs Migraine Jen):    • Harry Potter House Quiz // NORMAL JEN vs. ...  
○ Migraine Hacks (Migraine Jen Vlog):    • MIGRAINE VLOG // Life Hacks for Migraine A...  

Content ID Code: 3QPYDXNIXYULITIF
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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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