Elizabeth Vroom - Patients' involvement in clinical trial design
Автор: Fondation Maladies Rares
Загружено: 2025-09-04
Просмотров: 8
#PatientInvolvement #ClinicalTrials #TrialDesign #RareDiseases #PatientCentricity #MedicalResearch #EthicalResearch #drugdevelopment #ejprd
Elizabeth Vroom, founder and president of the Duchenne Parent Project Netherlands and Chair and co-founder of the World Duchenne Organization (UPPMD), explains why patient involvement is crucial in clinical trial design. She highlights how including patients early ensures trials address outcomes that truly matter, minimize burden, and reflect real patient needs. From rare diseases to everyday drug development, learning from patients helps design trials that are ethical, effective, and relevant.
This video is released under the CC BY-NC-SA 4.0 license and comes from the MOOC 'From Lab to Clinic: Translational Research for Rare Diseases', (https://www.futurelearn.com/courses/i...) developed as part of the European Joint Programme on Rare Diseases (EJP RD) by ERN EuroNMD, LUMC, EURORDIS - Rare Disease Europe, EATRIS and Fondation Maladies Rares.
More on EJPRD: https://www.ejprarediseases.org
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