Genetic Testing with Dr. Kathy Matthews, Parents' Rountable
Автор: FSHD Society
Загружено: 2025-08-21
Просмотров: 119
Join us for the next Parents' Roundtable on August 19th, featuring Dr. Kathy Mathews, who will discuss genetic testing for children and how to talk with your child about an FSHD diagnosis. This important conversation will explore both the medical and emotional aspects of navigating FSHD within the family. All family members are welcome, as these topics can be challenging and are best faced together with support and guidance.
Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. You may change your group membership at any time by emailing us at [email protected].
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