Weight loss, eating behaviours, and Huntington's: what research is telling us

In this webinar, Callum will explore the challenges of eating, digestion, and energy with Huntington's disease.

If you are affected by Huntington's disease and need support or advice, please contact us on 0151 331 5444 or email [email protected]

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Please note that every Huntington’s disease experience or journey can be different and not all information shared by the Huntington’s Disease Association will be relevant to all. Please discuss with your GP before undertaking any exercises or medical advice given in our videos.

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Chapters:
00:00 - Introduction
01:12 - Declarations and disclosures
02:15 - What we plan to cover
02:52 - Background to weight loss in Huntington's
04:11 - Key factor 1 - Cognitive issues
04:57 - Key factor 2 - Physiological issues
06:10 - Key factor 3 - Psychological problems
07:06 - Key factor 4 - Gastrointestinal dysfunction
08:30 - Summary of the literature review and questions raised
09:13 - Eating behaviours in Huntington's disease study timeline
10:11 - Study 1 - Interviews with a mixed cohort of Huntington's professionals and service users
10:45 - Theme 1 - It's just one big meal the whole day, really
13:25 - Theme 2 - Falling through the cracks
15:42 - Theme 3 - Mental barriers to weight maintenance
17:35 - Theme 4 - Physical barriers to weight maintenance
19:29 - Theme 5 - It's kind of depressing going out
21:55 - Theme 6 - The emerging importance of early identification, greater prioritisation, and pre-emptive intervention for weight loss
23:32 - Summary of the interview study data
24:33 - Study 2 - Analysis of the Enroll-HD Periodic Dataset 6 (PDS6)
25:50 - Does the data suggest that weight loss is common?
27:52 - BMI correlates of total motor score using the UHDRS
30:55 - BMI correlates of apathy and independence
32:03 - BMI correlates of CAG Age Product (CAP) scores
33:41 - Summary so far - BMI correlates of symptom severity
35:53 - Next steps - HD-EAT
38:01 - HD-EAT, how can you get involved?
38:58 - Next steps - FEEDhd