I’m Mad: Chronic Illness Flare-Ups, Disease Progression and Treatments Failing

This week on Calling in Sick, I’m showing up mad. After almost two years of flaring, I’m starting to wonder if this maybe isn’t just a flare anymore… maybe it’s my new normal. And with that comes the worry that my current medical protocol is failing. THAT is a brutal, frustrating, gut-punch of a realization.

Although I am usually a pretty positive gal, I know that anger has its place in any chronic illness journey. Anger is valid, it’s messy, and it can even be productive. So this week I’m sharing the reality of my flare, the “Sophie’s choice” of next steps my doctors and I are weighing, and why this timeline impact is breaking my heart.

We’re diving into:
🔥 What it feels like to be stuck in flare limbo: blip vs. starting over from square one
👩‍⚕️ The impossible decisions between steroids, testing, and “AMA” moments
💔 Why shifting motherhood timelines hurts so much… and why I hope is pushing me forward
🌱 My solulu for sitting with anger, finding joy in small glimmers, and controlling what I can

If you’ve ever been mad at your body, mad at the system, or mad at the endless waiting, this episode is your permission slip to say it out loud, feel it fully, and then keep going.

xx,
Alex

💬 Comment: What’s one way you’ve learned to sit with your frustration during flares?


Timestamps:
00:00:00 Welcome back to Calling in Sick!
00:07:47 Alex’s Picks of the Week (Boka, Camp Snap Camera)
00:11:25 What a flare up looks like for me
00:15:20 The impossible decisions between steroids, testing, and “AMA” moments
00:25:18 My solution for sitting with anger, finding joy in small glimmers, and controlling what I can
00:27:55 One Brain Cell Show: Love Thy Nader
00:31:10 Thank you for listening!
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Alex’s Picks of the Week:
How to get pearly white teeth for any camera-ready moment!!!
✨Snap Camera - go.shopmy.us/p-25209103 ($70; shopmy)
✨Boka Toothpaste - https://amzn.to/3K1j7JW ($12; amazon)


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