How I Find Meaning in My ME/CFS Work

In this video, I share how I try to find meaning in my experience of living with ME/CFS — and how that meaning shapes the work I now do.

🎥 Topics I explore:

The idea of “turning around the ME/CFS ship”

The deep inspiration I take from my late mother

Why I consider myself a patient advocate-journalist

And why I believe in keeping all core content free and accessible

I hope this video offers some hope, reflection, or even just companionship on your own journey.

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⏱️ Timestamps

0:00 – Introduction
1:21 – Finding meaning in my ME/CFS experience
3:50 – Why I want to help “turn around the ME/CFS ship”
6:40 – Inspiration from my late mum
8:20 – How I see my role: Patient advocate & journalist



🔗 Resources Mentioned:

My Sponsors:
Normalyte (please use this link) - https://normalyte.com/?utm_source=You...

🧠 Affiliates / Tools That Helped Me:
• DNRS Brain Retraining: https://retrainingthebrain.com/?wpam_...
• Dr Eleanor Stein's self-management and neuroplasticity courses: https://www.eleanorsteinmd.ca/a/21475...
• Oxygen advantage courses (use code 'oaonlinecourse10' for ten percent off) https://oxygenadvantage.com/?ref=836
• Check out my affiliate shop of books and other resources that have helped me here: https://www.patrickussher.com/shop

🌐 My Website & Consultations: www.patrickussher.com
📩 Want to share your story on the channel? Contact me through the site above.
📕 Free eBook: The Myth of Primary Polydipsia in ME/CFS, POTS & Long Covid www.themythofprimarypolydipsia.com

⚠️ Disclaimer: This content is for educational purposes only and is not medical advice. Always consult a qualified healthcare professional before making health decisions.

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#PatientAdvocate
#ChronicIllnessJourney