Julia Vitarello - Rare Can Be Everywhere

Julia Vitarello, Founder & CEO of Mila's Miracle Foundation, presents at the NORD RareLaunch® Forming a Foundation Workshop on December 2, 2020.


If your rare disease community does not have a nonprofit “home,” have you considered what it might take to start one?  The Forming a Foundation Workshop can help you overcome the obstacles to starting a nonprofit and help give your rare disease community a strong voice with a nonprofit organization.

Speakers will include experts with experience in both nonprofit governance as well as those who have walked the path to developing a nonprofit for their rare disease, with discussion topics including:
● Finding community when your population is small – many nonprofits already have established online communities. How do you move forward from online into the physical world?
● Fundraising without a 501(c)(3) – raising the money to support a nonprofit without the infrastructure of a nonprofit through online fundraising platforms, grants and other direct appeals
● Learning about the nuts and bolts of nonprofit development – practical, pragmatic guidance on everything from articles of incorporation to bylaws
● Developing your Board – finding and recruiting the members of your Board of Directors.
● Growing your nonprofit – advice on recruiting and retaining volunteers


For more information on NORD and their RareLaunch® Workshops visit:
https://rarediseases.org/nord-rarelau...


Learn more about Julia Vitarello and Mila's Miracle Foundation:
● Foundation WEBSITE: https://www.milasmiracle.org/
● This is Today PHOTO JOURNAL: https://www.this-is-today.com/home
● Julia's BLOG: https://www.milasmiracle.org/blog
● Julia's BIO: https://www.milasmiracle.org/julia-vi...