The prison of M.E.

Having #severeME and being homebound often feels like a prison. You're locked up in your home and your body, away from society, your loved ones, from the life you desperately yearn to live.

Most years, I see maybe one or two people, and many years I didn't see anyone at all. I often get the question how do I get by and how do I get help, even though I don't really see or communicate with anyone.

My health has somewhat stabilized since moving to a new and quiet place, and I can therefore do a bit more (hence the filming), but other than these changes, I'm still very much imprisoned by ME. So, like last year, I decided to document my life locked up in my home by ME to give a unique insight into my life with ME and how I spend the last year(s). 

I hope you'll enjoy watching it. There are subtitles in different languages included, and there will be more to follow. Don't forget to share! 🙏👍♥️

Groetjes, 

Anil 

#MEawarenessMonth

#MEawarenessday (which is tomorrow)

#pwme #myalgicE #millionsmissing #severeME #photophobia #hyperacusis #POTS

Subtitles:

NL: Rob Wijbenga
IT: Chiara Ginestra
ENG: Anil van der Zee
RO: Susana
DE: Antje Ritter Woodbur
CS: Jana Nosková
ES: Chiara Ginestra & María Monserrat Cadenas Sánchez.
Turkish: Bilge Cetin