BEAT-PCD
BEAT-PCD Clinical Research Collaboration (CRC) is a network of multidisciplinary researchers and clinicians and was funded in 2020 by the European Respiratory Society. The network is coordinating research from basic science to clinical care, with the ultimate goal to improve diagnosis and develop treatments that lead to improvements in long-term outcome of patients with PCD. Check out our website for current events.
PCD Patient conference 2025
PCD expert talks: EPIC-PCD − focusing on the upper airways
PCD Expert talks: Patient partnerships in PCD research
PCD Expert talks: "AI and digital tools for screening, diagnosis and characterization of PCD"
PCD Expert talks: “Genetics in PCD diagnosis – CiliaVar and ClinGen”
1 - Cilia in PCD – Amelia Shoemark
2 - Symptoms and manifestations of PCD – Myrona Goutaki
4 - Results of recent clinical trials – James Chalmers
3 - Spectrum of PCD disease severity – Claire Hogg
5- Latest progress on clinical trials of mRNA therapies for PCD - Michael Loebinger
6 - Latest advice on airway clearance techniques - Paolo Buonpensiero
PCD Spanish patient testimonial video
PCD expert talks: Patient perspective: What’s needed for multidisciplinary PCD care?
PCD expert talks: Adult PCD Clinical Cases
PCD expert talks: Paediatric PCD Clinical Cases
PCD expert talks: Fertility and PCD
3c - Research updates: Research priorities/cohort studies - M. Goutaki
2a - Therapies/management including new treatments: Pediatrics - J. Roehmel
1 - What is PCD - Basics - S. Crowley
3b - Research updates: Fertility - J. Raidt
2b - Therapies/management including new treatments: Adult - F. Ringshausen
3a - Research updates: Genetics - M. Legendre
PCD expert talks: Genotype-phenotype associations in PCD
PCD expert talks: Measuring nasal nitric oxide in children
PCD expert talks: ENT management of PCD patients
PCD expert talks: Integration of clinical, genomic and molecular data for PCD
BEAT PCD Patients conference Day 1 Patients videos
BEAT PCD Patients conference Day 2 Patients videos
PCD expert talks: Psychological aspects in Primary Ciliary Dyskinesia
BEAT PCD Patients conference Day 2 Session 4