PCD Patient conference 2025
Автор: BEAT-PCD
Загружено: 2025-12-02
Просмотров: 45
00:00 Introduction - Myrona Goutaki
01:14 Session 1 - Research updates
02:19 mRNA therapies - Claire Hogg
26:20 DPP1 inhibitors therapies - Jobst Röhmel
39:46 Anti-pseudomonas treatment - Oriol Sibila
53:43 Q&A with panel on research updates
01:10:28 Session 2 - Nutrition
01:11:39 Nutrition and chronic lung disease -Raphaëlle Varraso
01:31:17 Q&A with panel on nutrition
02:03:36 Session 3 - Transition from paediatric to adult care
02:05:35 Transition and PCD - Guillaume Thouvenin & Amanda Harris
02:27:32 Q&A with panel on transition
02:40:17 Session 4 - Living with PCD as an adult
02:41:47 Special issues related to adult care - Margherita Silani
02:53:14 Q&A with panel on adult care
02:53:13 Conclusion - Myrona Goutaki & Amelia Shoemark
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