Hopes Journey with epilepsy and ACC
This page is for baby Hope, when we was 20wks pregnant she was diagnosed with hypogenesis of corpus callosum,a cyst in middle of her brain and abnormal front left lobe,and abnormalities to the right side, confirmed by MRI at 1yrs of age, the outcome wasn't looking good but we had Hope! She was 3 months old when the seizures started! Then she was Finally diagnosed with complex generalized focal,partial,absent myoclonic flexor & tonic clonic spasms at 7months then given meds but no change,daily seizures still occur, lots of EEG's show more epilepsy episodes. We were told she would need life time care, She started on clobazam, keppra,vigabatrin and topamax. She has global development delays and mobility struggles. Now 4 years old we still have HOPE and HOPE has us! She's defying her odds and is so happy!
We will take any struggles head-on! ❤
💫PLEASE SUBSCRIBE AND FOLLOW HOPES JOURNEY AND PROGRESS AND HELP BRING AWARENESS TO HCC AND EPILEPSY 💫
Thanks guys its so much appreciated ❤️
Hopes seizures how they evolved over 5 years, infantile spasms, drop attack seizures, tonic clonic
Hopes Seizures evolved, tonic clonic, drop outs, spasms, strongest ones yet 4 years old
Hopes Seizures happy times with her crazy dogs. The love they share is so special 💗
Hopes seizures, big drop outs, aged 4 years 7 months #epilepsy #acc #beautiful #nevergiveup
Hopes Seizures woken up to a seizure eyes roll eyes stuck in a stare/spasm sword position #epilepsy
Hopes Seizures, Hopes happy times summer 2024 #fighter #nevergiveup #beautiful #babygirl #seizures
Hopes Seizures full drop out /drop attacks start to finish Seizure,eye rolls spasms to light spasms
Hopes Seizures, spasms , eye rolls ,drop outs, 4 years old jumpy twitchy #epilepsy #seizures
Hopes seizures aged 4 years, a light cluster of spasms and eye rolls, #epilepsy
Hopes Seizures,recognising different types,not all are convulsions!,eye rolls, spasms,head drops ect
Hopes seizures Happy 4th Birthday #epilepsy #fighter #nevergiveup #lennoxgastautsyndrome #acc
Hopes Seizures drop attacks, spasms , clusters, lennox gastaut syndrome #epilepsy
Hopes seizures Epidiolex medication being reduced, Happy Hope #epilepsy lennox gastaut syndrome
Hopes seizures, lennox gastaut syndrome. drop attacks, spasms, tonic clonic generalized convulsions
Hopes seizures, head drops, spasms, brain switch off, eye rolls, came from no where!
Hopes seizures and ACC Hopes happy time, no epilepsy spasms or head drops, just happy Hope for 5mins
Hopes seizures,head drops,spasms,brain switch off, always finish happy & smiling #fighter #epilepsy
Hopes seizures aged 3 years convulsions/head drops, drop attacks, generalised tonic clonic
Hopes seizures aged 3 years 4 months, eye rolls , body switch off, cluster, tonic spasms, ect
Hopes seizures,3 years 3 months old. starting to scare her but ends with smiles as always! #epilepsy
Hopes seizures evolved to convulsions 3 years old , epilepsy, absent corpus callosum
Hopes seizures,light seizures from today,hand signals amaze us! shes so clever 🥰 #acc #epilepsy
Hopes seizures almost 3 years old, bad day, seizures all day! #epilepsy #agenisisofthecorpuscallosum
Hopes walking progress 31 months hypogenesis of corpus callosum #epilepsy #nevergiveup #fighter
Hopes seizures light head drops, trying to control herself, happy as ever though! 35 months old
Hope's seizures Head drops, up to 15 clusters a day! refractory to medication, 34 months old
22 week Ultrasound absent corpus callosum
Hopes Seizures all day long, head drops, spaced hands absence partial focal,alert & aware inbetween
Hopes seizures after a nap. Complex partial focal absence generalised, tonic spasms ACC
Hopes Seizures Head drops spaced hands absence complex partial clonic focal lennox gastaut syndrome