Myotonic Dystrophy Foundation
The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 80 countries around the world.
MDF is a non-profit, 501(c)(3) organization based in Oakland, CA, and founded in 2007 by families living with myotonic dystrophy (DM).
Our vision is a world with treatments and a cure for myotonic dystrophy.
The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure:
+ We support and connect the myotonic dystrophy community.
+ We provide resources and advocate for care.
+ We accelerate research toward treatments and a cure.
Care that Connects: How MDF Supports Families Living with Myotonic Dystrophy
Advancing the Cure: How MDF Drives Research in Myotonic Dystrophy
Finding Community: How MDF Connects Families Living with Myotonic Dystrophy
Ask-the-Expert: Life Hacks from the Myotonic Dystrophy Community
PepGen - Meet the DM Drug Developers 2025
Stump the Doctor: Exercise for DM - 2025 Myotonic Dystrophy In Motion Awareness Month
Resistance Training - 2025 Myotonic Dystrophy In Motion Awareness Month
Advocacy for DM Research Funding - 2025 International Myotonic Dystrophy Awareness Day
Sanofi - Meet the DM Drug Developers 2025
Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 2 (DM2)
Mind Matters: Navigating Cognitive and Memory Challenges in DM2 - 2025 MDF Conference
Nourishing Solutions: Managing Dietary Needs and Swallowing with DM - 2025 MDF Conference
Your Guide to Clinical Trials: From Phases to Participation - 2025 MDF Conference
Finding Relief: Exploring Medications & Tools for Managing Pain in DM2 - 2025 MDF Conference
Adulthood Ahead: Essential Planning for Parents of Children with CDM - 2025 MDF Conference
DM2 Essentials: Understanding, Managing, & Thriving with DM2 - 2025 MDF Conference
Understanding DM1: From Genetics to Care - 2025 MDF Conference
Building Resilience: Family Dynamics & Support in the DM Journey - 2025 MDF Conference
Securing Tomorrow: Financial Strategies & Planning for the Future - 2025 MDF Conference
Empowering Adult Children Managing Care, Service Delivery, & Living with CDM - 2025 MDF Conference
Unaffected Caregivers: Balancing Romantic Connections & Caregiving in DM - 2025 MDF Conference
Genetics Unveiled: DM2 Understanding Testing & Counseling - MDF 2025 Conference
Breathe Easy, Sleep Sound: Managing Sleep & Pulmonary Health with DM1 - 2025 MDF Conference
Living Better with DM Tools & Services of Occupational Therapy & Home Health - 2025 MDF Conference
Keeping Your Heart in Check: DM1’s Impact & Care Tips - MDF 2025 Conference
Young Investigators’ Workshop Career Panel - 2025 MDF Conference
Young Investigators’ Poster Presentation Showcase - 2025 MDF Conference
DM1 Adversely Affects Liver Function & Lipid Metabolism - 2025 MDF Conference
Highlighting New Research - 2025 MDF Conference
CNS Symptoms and Meaningful Clinical Trial Endpoints - 2025 MDF Conference