Pulmonary Hypertension Knowledge Sharing Platform
The Pulmonary Hypertension Knowledge Sharing Initiative is a collective effort, led by patients and supported by passionate volunteers, to disseminate information about pulmonary hypertension to the community. The team behind it is made up of members of the Alliance for Pulmonary Hypertension (AfPH), a Brussels-based non-profit patient organization, pulmonary hypertension patients, family members, friends and supporters. The project is self-funded, has minimal annual overheads and is run entirely by volunteers.
Learn more at: https://ph-ksp.com/
Using a mascot to raise awareness of Pulmonary Arterial Hypertension
How to Organize a Pediatric Pulmonary Arterial Hypertension (PAH) Family Weekend
Living with photopheresis post double lung transplant - Alena Adarbehovaa
Just diagnosed with pulmonary hypertension? Here is what you can expect
Living with pulmonary hypertension and pump therapy - Louise Bouman
"What's New in Pulmonary Hypertension" Q1 2025 (Full Recording)
The GoDeep PH International Registry - Prof. Ardeschir Ghofrani
The PH Global Patient Survey - Mr. Matt J. Granato
Novel agents and their impact on the treatment algorithm - Prof. Sandeep Sahay
Introducing the Pulmonary Vascular Research Institute and the Rio Congress - Karen Osborn
What’s new and hot in Pulmonary Arterial Hypertension in 2025 - Dr. Hans Klose
Access to Pulmonary Hypertension Care in the Global South
PH Warrior Sophia Esteves - Mental Health and PH
Navigating my experience with clinical trials in Pulmonary Hypertension
The rise of PH patient associations & their role in today's care landscape
Introducing the Pulmonary Hypertension Knowledge Sharing Platform