Living with photopheresis post double lung transplant - Alena Adarbehovaa
Автор: Pulmonary Hypertension Knowledge Sharing Platform
Загружено: 2025-05-07
Просмотров: 945
My Sanctuary: Alena’s Journey Through 400 Photopheresis Sessions
In this powerful and intimate Patients Empowering Patients (PEP Talks) episode, Alena Adarbehova shares her extraordinary story of resilience, hope, and quiet strength. A two-time double lung transplant recipient and former primary pulmonary hypertension patient, Alena takes us through her experience living with Chronic Lung Allograft Dysfunction (CLAD) and undergoing over 400 sessions of photopheresis (ECP)—a therapy that has become more than a treatment; it’s become her sanctuary.
Discover:
What photopheresis (extracorporeal photopheresis) really is—and how it supports patients like Alena
How Alena turned a clinical procedure into a ritual of hope, reflection, and gratitude
Her emotional and physical journey through lung transplants, rejection, and stabilization
The role of her medical team, family, and patient community in navigating chronic illness
✨ Alena’s message is clear: while lung function may decline, life function can thrive. Her story inspires anyone facing chronic illness, rare therapies, or the unknown to keep going, to embrace every breath, and to find strength in small, consistent acts of care.
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🔗 Learn more about pulmonary hypertension and support networks: https://ph-ksp.com/
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