Kerry
My goal with this channel is to document parts of my life that are hopefully of help to those also dealing with chronic illness. There’s really no posting schedule or format for me, as living around an illness makes it hard to be consistent, and when I AM doing well, I’m usually not thinking about YouTube.
I’m Kerry and I’m a 30-something living in the USA. I struggle with EDS and its comorbid conditions. IST, POTS, SIH, CSF leaks, and low pressure Chiari Malformation. Tarlov cysts on nearly every nerve root of my spine are the cause of the leaks/low intracranial pressure. Don't be intimidated by all of the 3 letter abbreviations. We can just settle on "Oooof. Bummer."
I’m more active on IG @invisiblekerry.
Obviously I’m not a doctor and this channel is in no way professional medical advice. This channel is snippets of my life and recaps of my experiences.
My Story: Low Pressure Chiari, CSF Leaks & Tarlov Cysts
My Pacemaker Experience
Brain Herniation: 3 Years Later
Chronic Illness & Coping
What Happened In L.A.
Pacemaker Revision Surgery Experience
Diagnosing The Worst Headache Of My Life
My Experience With Ketamine Infusions For Chronic Pain
1 Year Of The Worst Headache Of My Life
Medtronic Reveal LINQ Monitor Implant
How Our Family Handles My Illness
Chronic Illness and Hopelessness
February Wasn't Fun.
I'm Not Over-Sleeping...I'm Hibernating.
IST/POTS Update
Hanauma Bay
Recovery, Day 4!
If your face looks like a monster clap your hands! *clap clap*
FINALLY Surgery Day!
Inappropriate Sinus Tachycardia-Procedure #3