Daniel de Boer started ProQR when one of his children was diagnosed with a rare disease
Автор: ProQR Therapeutics
Загружено: 2021-02-28
Просмотров: 1308
Sunday February 28th 2021 is Rare Disease Day. For Daniel de Boer, founder and CEO of ProQR Therapeutics, it all started with his son being diagnosed with a rare disease. Now years later ProQR is developing medicines for multiple rare genetic diseases.
Check out the Rare Disease Day website at https://www.rarediseaseday.org and learn more about the people living with rare disease, the high unmet medical need and how to get involved as an advocate.
The event footage from this video is taken from the Eye on the Future Forum that took place on 2020's Rare Disease Day in Paris. The EFF brings together key stakeholders in developing therapies for inherited retinal diseases. Find out more at https://eyeonthefutureforum.com/
If you want to learn more about the therapies ProQR is developing for rare genetic diseases, this is a good place to start: https://www.proqr.com/pipeline
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