RARE REV-inar episode 019 part 1: What is mastocytosis and what is the diagnostic pathway?
Автор: RARE Revolution Magazine
Загружено: 2025-06-04
Просмотров: 248
Systemic Mastocytosis: Are we speaking the same language?” hosted by RARE Revolution Magazine and sponsored by Blueprint Medicines, discussed the complexities of mastocytosis, a rare disease affecting mast cells. Dr. Deepti Radia and Jess Hobart emphasized the need for nuanced language and personalized care. Dr. Radia highlighted the lack of standardized diagnostic pathways and the importance of multidisciplinary teamwork. Jess shared her personal journey, stressing the need for patient advocacy and self-management. They also discussed the role of AI in diagnosis, the significance of clinical biomarkers, and the importance of mental health support. Future advancements include new medications and improved clinical guidelines to enhance patient care.
This is an excerpt from a longer webinar called “Systemic Mastocytosis: Are we speaking the same language?”. Sponsorship for this RARE Rev-inar was provided by Blueprint Medicines as part of an arm’s length sponsorship agreement. Blueprint Medicines have had no control over the choice of speakers, curation of the webinar or it’s promotional materials.
As with all of our Rev-inars, opinions remain solely those of the speakers. This webinar is not intended to constitute medical advice. If you have concerns, regarding your own health please contact your healthcare provider for personalised advice. For the rest of the videos and the full webinar please visit www.rarerevolutionmagazine.com
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