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Nick Sireau on patient-driven scientific breakthroughs and drug repurposing
Автор: eurordis
Загружено: 2025-04-01
Просмотров: 62
Описание:
In this episode of Rare on Air, host Julien Poulain speaks with Nick Sireau, CEO of the AKU Society (https://akusociety.org/) and father to two sons living with alkaptonuria. Nick shares how his son’s unexpected diagnosis led him to become a leading advocate for rare diseases and a pioneer in drug repurposing.
Nick recounts how a molecule once destined to be a weedkiller became a treatment for AKU, and reflects on the broader promise and challenges of repurposing approved therapies for different rare conditions.
Join the conversation using #EurordisRareOnAir or contact the podcast at [email protected] (mailto:[email protected]) .
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