April 2021 OI Clinic Town Hall

The OI Foundation held a Virtual OI Clinic Town Hall on April 16, 2021. This meeting was intended for medical professionals of all specialties that work in an OI clinic setting. The speaker agenda is below. Please reach out to the OI Foundation at [email protected] with any questions.

0:00 Intro
4:03 Care for the Child with Moderate to Severe OI in the First Year of Life
Michael Bober, MD, PhD (Keynote Speaker)- Nemours A.I. duPont Hospital for Children

47:22 No Body is Expendable - The OI Community Faces COVID
Kara Ayers, PhD - University of Cincinnati University Center for Excellence in Developmental Disabilities

1:03:46 Developing Individualized Infusion Protocols
Eric Rush, MD - University of Kansas Medical Center

1:21:23 Diversity and Inclusion in OI Care; How Can We Support Our Entire Community?
Chaz Kellem - PittServes

1:34:47 The OI Registry and Patient-Centered Outcomes Research Initiatives - An Update
Laura Tosi, MD - Children’s National Hospital

1:50:08 Pregnancy in OI: What We Know and What We Need to Know
Deborah Krakow, MD - University of California, Los Angeles

2:08:43 Educational Opportunities:
-Quarterly OI Surgical Case Review: Jeanne Franzone, MD - Nemours/Alfred I. duPont Hospital for Children
-OI TeleECHO: Frank Rauch, MD - Shriner’s Hospitals for Children - Canada, McGill University
-OIF Resources and Upcoming Events: Tracy Hart, CEO - Osteogenesis Imperfecta Foundation

2:16:10 Roundtable: Developing and Supporting your OI/Bone Health Clinic - Insights and Challenges
-Paul Esposito, MD - Children’s Hospital and Medical Center
-Michelle Caird, MD - University of Michigan
-Sandesh C.S. Nagamani, MD - Baylor College of Medicine