April 2022 OI Clinic Town Hall

The OI Foundation held a Hybrid OI Clinic Town Hall on April 8, 2022. This meeting was intended for medical professionals of all specialties that work in an OI clinic setting. The speaker agenda is below. Please reach out to the OI Foundation at [email protected] with any questions.

0:00 Welcome Remarks: Why a Town Hall Meeting? Why PCOR?
Laura Tosi, MD, Meeting Chair, Children’s National Hospital

Session I: Topics We Need to Talk More About
1:10 Women’s Health
Deborah Krakow, MD, UCLA

28:20 Talking to Your Patients about Sexual Health
Michelle Fynan, PhD

56:45 Issues Beyond Long Bone Fracture Care
Jeanne Franzone, MD, Nemours/Alfred I. duPont Hospital for Children

BREAK

Session II: Establishing Clinical Recommendations
1:35:40 OI Foundation Best Practices
Tracy Hart, CEO, OI Foundation

1:40:00 Is it time to make firm clinical recommendations for pulmonary care?
Robert (Sandy) Sandhaus, MD, PhD, National Jewish Health

Session III: News You Can Use
2:06:30 OI Registry Experiences/Leveraging the Registry Going Forward
Laura Tosi, MD, Meeting Chair, Children’s National Hospital
Deborah Krakow, MD, UCLA
Reid Sutton, MD, Baylor College of Medicine
Jeanne Franzone, MD, Nemours/Alfred I. duPont Hospital for Children
Jill Flanagan, MD, Children’s Physician Group

2:21:00 OI TeleECHO
Frank Rauch, MD, Shriners Hospitals for Children

2:25:03 New Diagnosis Toolkit
Michael Bober, MD, PhD, Nemours/Alfred I. duPont Hospital for Children

2:33:20 Surgical Case Conference
Jeanne Franzone, MD, Nemours/Alfred I. duPont Hospital for Children
Jill Flanagan, MD, Children’s Physician Group

BREAK

Session IV: Transition and Adult Care
2:42:17 Current OIF Activities/Resources
Jessica Ransome, Health Educator, OI Foundation

2:51:50 PCORI Project on Transition and Adult Care
Laura Tosi, MD, Children’s National Hospital
Sharon Mutnick, Board Member, OI Foundation

3:00:00 Pain Management in OI: the elephant in the room
Mercedes Rodriguez-Celin, MD, Shriners Hospitals for Children

Session V: Discussion: Looking to the Future
3:42:35 Expanding OI Clinic Town Halls
Laura Tosi, MD, Children’s National Hospital
Tracy Hart, CEO, OI Foundation