Ramsay Hunt Syndrome 10 Month Update: What’s Improved, What Hasn’t, What I'm Trying Next
Автор: Ramsay Hunt Stephen
Загружено: 2026-01-18
Просмотров: 10
Here is my 10 month update on Ramsay Hunt Syndrome sharing what’s improved, what hasn’t, and how I’m navigating recover.
In this video, I cover:
• Where my facial function and synkinesis are at 10 months post-diagnosis
• The role of facial physical therapy in my progress
• Alternative and adjunct therapies I’m exploring, including red light therapy, supplements, and hyperbaric oxygen treatment
• My mental health and how I keep a positive attitude
• Communities and thoughts on how community can help
Chapters
0:00 Introduction
0:34 Summary of current issues
1:31 Facial paralysis therapy
3:05 Palsy check
4:33 Synkinesis issues
4:57 Alternate therapies: supplements, acupuncture, red light therapy, investigating hyperbaric oxygen therapy
8:32 Mental health with chronic illness
11:35 Communities for Ramsay Hunt and the power of community
Disclaimer: I’m not a medical professional—just someone sharing a real-life experience.
Resources I've found helpful:
Mayo Clinic Ramsay Hunt Syndrome
https://www.mayoclinic.org/diseases-c...
NIH Ramsay Hunt Syndrome (this is a long, deep read)
https://www.ncbi.nlm.nih.gov/books/NB...
Wikipedia Article
https://en.wikipedia.org/wiki/Ramsay_...
Ramsay Hunt Syndrome Foundation
https://www.ramsayhuntfoundation.org/
Ramsay Hunt Syndrome Facebook Support Group
/ ramsayhuntsyndrome
Book
Fix My Face: Expert Advice for Maximizing Recovery from Bell’s Palsy, Ramsay Hunt Syndrome, and Other Causes of Facial Nerve Paralysis
https://www.amazon.com/Fix-My-Face-Ma...
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