Preparing for the Lipodystrophy EL-PFDD Meeting | What You Need to Know
Автор: Lipodystrophy United
Загружено: 2025-12-04
Просмотров: 0
Join Kate Stratton, Executive Director of Lipodystrophy United, and Sharon Halperin, Research Director, as they share an overview of our upcoming Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting with the U.S. Food and Drug Administration (FDA).
The EL-PFDD Meeting will take place on September 11, 2026, near Washington, D.C.
This historic event will bring together patients, caregivers, clinicians, researchers, and regulators to ensure that the lived experience of lipodystrophy is clearly understood and meaningfully incorporated into FDA decision-making.
✨ Your voice matters.
If you live with lipodystrophy—or care for someone who does—you can participate by submitting your interest here:
🔗 Participation Form: https://docs.google.com/forms/d/e/1FA...
For questions or to connect with the LU team:
📧 [email protected]
🌐 www.lipodystrophyunited.org
Follow us on social media:
📸 Instagram: @lipodystrophyunited
▶️ YouTube: Lipodystrophy United
📘 Facebook: Lipodystrophy United
🐦 Twitter/X: @LU_Community
Together, we are shaping the future of lipodystrophy care.
We are United.
#Lipodystrophy #LipodystrophyUnited #RareDisease #PFDD #ELPFDD
#FDA #PatientVoice #PatientAdvocacy #WeAreUnited
#ClinicalTrials #RareDiseaseCommunity #LivedExperience
Доступные форматы для скачивания:
Скачать видео mp4
-
Информация по загрузке:
