Pages 76 - 78 Data Generation

I generated data in the form of vignettes (ethnographic in style despite my using participant observation), and reflective memos, I ended up with hundreds and hundreds of pages of detailed notes.

If you work with people with profound and multiple learning disabilities you will understand how revisiting moments shared with them can enhance your ability to be together in the future, whilst 'data' sounds cold and formal, the reflective process undergone through my data connection serves to enhance the warmth of human connection.

You can read a little about this on pages 76-78 of my thesis (which is available for free here: https://eprints.soton.ac.uk/497372/ )

The other publications resulting from this work were:

Nind, M and Grace, J (2024) The emotional wellbeing of students with profound intellectual disabilities and those who work with them: a relational reading. Disability & Society, 1–22. https://doi.org/10.1080/09687599.2024...

Grace, J (2024) Fairness, Fruitfulness, Fact: An Argument for the Belonging of People with Profound Intellectual and Multiple Disabilities within Research, in Fleming, K & Demissie, F (Ed) Nurturing ‘Difficult Conversations’ in Education Empowerment, Agency and Social Justice in the UK https://www.bloomsbury.com/us/nurturi...

Grace, J. and Nind, M. (2024), "Creating Insight About Inclusion Together With Young People With Profound Intellectual and Multiple Disabilities", in Rose, R. and Shevlin, M. (Ed.) Including Voices (International Perspectives on Inclusive Education, Vol. 23), Emerald Publishing Limited, Leeds, pp. 77-87. https://doi.org/10.1108/S1479-3636202...

Grace, J.; Nind, M.; de Haas, C.; Hope, J. (2024) Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research. Soc. Sci. , 13, 37. https://doi.org/10.3390/socsci13010037

Grace, J. (2022) Share their picture, say their name. Is it safe to share photos of people with profound intellectual and multiple disabilities online? The ethics of being presented to the online world. PMLD Link. 34. 3. 103.
www.PMLDlink.org.uk

de Haas, Catherine, Joanna Grace, Joanna Hope, and Melanie Nind. 2022. Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities. Social Sciences 11, 4: 159. https://doi.org/10.3390/socsci11040159