Jack's story: Hereditary spastic paraplegia type 4

Seven-year-old Jack Laidlaw, the oldest of three boys, is upbeat and friendly to everyone he meets, according to his parents, Anna and Richard Laidlaw. But Jack faces challenges due to a rare disorder he cannot yet comprehend. His parents are determined to remain hopeful and create a better future for him despite his diagnosis of hereditary spastic paraplegia type 4 (SPG4).

🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories on our website at https://umassmed.edu/rarediseasesreal... or wherever you get your podcasts.

💜 Learn more about the Laidlaw family and their efforts to support SPG4 research.

BluGenes
https://blugenes.org/spg4-cure/

SPG4 research and treatment for Jack
https://give.rarevillage.org/campaign...

To learn more about hereditary spastic paraplegia, patient advocacy and research, visit the following resources:

UMass Chan Medical School
https://www.umassmed.edu/GrayEdwardsL...

Boston Children’s Hospital, Spastic Paraplegia – Centers of Excellence Research Network
https://www.childrenshospital.org/con...

Cure SPG4 Foundation
https://www.curespg4.org/

Spastic Paraplegia Foundation, Inc.
https://sp-foundation.org/

Mauray Koduri Foundation
  / mauryakodurifoundation  

The Lilly and Blair Foundation
  / mauryakodurifoundation  

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