Managing medications effectively for those born with OA/TOF

In this live Q&A we are joined by Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick. Anja and Christian answer questions or concerns around the medications taken by those born with OA/TOF.

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03:14 What are the long-term effects of Proton Pump Inhibitors (PPIs)?
15:55 What are the long-term effects of omeprazole?
22:36 Are PPI’s detrimental to the gut biome?
28:20 Apart from PPIs, what else can be given to manage reflux in babies?
33:52 What is the maximum amount of PPI a child can take?
39:10 How often should I get medication reviewed due to weight gain?
42:55 Can you take omeprazole and azithromycin daily for life?
45:47 What treatments are available to treat Eosinophilic Oesophagitis in an adult born with long gap OA?
51:04 How long should someone take Losec?
53:15 TOAST trial research project update
58:30 How much PPI is too much?
1:00:17 What are the latest, most effective PPI medications?
1:02:37 What are the signs of silent reflux?

About TOFS:
TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of people born with the OA/TOF condition and their carers. For over 40 years we have been helping people through the lifelong challenges that being born with OA/TOF (also known as EA/TEF in some parts of the world), VACTERL and associated conditions can bring.

Visit https://www.tofs.org.uk for more information and support.

Disclaimer: TOFS is not engaged in the practice of medicine, and any information provided is not intended or offered as medical advice and is absolutely not a substitute for the patient’s individual consultation with qualified healthcare professionals. Read more at: https://tofs.org.uk/terms-conditions/