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Launch of the Rett Syndrome Global Registry
Автор: Rett Syndrome Research Trust
Загружено: 2023-11-14
Просмотров: 590
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The Rett Syndrome Global Registry is a fully remote, parent reported database to centralize patient information, track and graph symptoms, share data with doctors to improve care and contribute to developing treatments for Rett syndrome. In this webinar Rett clinic directors Dr. Cary Fu and Dr. Bernhard Suter and RSRT's Chief Scientific Officer, Dr. Jana von Hehn share some preliminary data from the registry and their vision for the future.
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